Sunday, June 26, 2022

LESSONS LEARNED FROM A PARENT AND CAREGIVER

 OF AN INDIVIDUAL LIVING WITH SPINAL CORD INJURY

Traveling is big on their fun time list, but as anyone with SCI knows, it is difficult to move to a seat – often with risky assistance from poorly trained airline or ground crew prone to manhandle rather than assist a paraplegic person with care and dignity. 

To this day, the family travels with a manual chair, because airlines are infamous for destroying and even losing expensive, essential power wheelchairs.

“Whomever is disabled, if they don’t have an advocate with a big mouth, they are in trouble,”

Folgueiras said, noting some salty language may slip into her conversation with foolish waiters and other service people who either pretend David is invisible, has the mind of the seven year old or will have his day brightened by being patted on the head and patronized like a pet.

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