YOUR VOTE MATTERS:

DISABILITY ADVOCATES CAN HELP CHANGE 

LEGISLATION FOR THE BETTER

It’s encouraging to look at how the disability community has positively influenced public policy regarding disability benefits in the last few years.

In 2022, Congress passed the ABLE Age Adjustment Act. Starting in 2026, the age of onset of disability to be eligible for an ABLE account will change from 26 to 46.

These tax-advantaged savings accounts allow individuals with disabilities to save and pay for disability-related expenses without endangering their benefits.

The policy change is estimated to make an additional 6 million people eligible for ABLE accounts.

In addition, the 2022 Inflation Reduction Act requires Medicare to cap the out-of-pocket costs of medications at $2,000 starting in 2025.

Currently, people with neuromuscular diseases on Medicare can see drug costs in the many thousands of dollars.

Advocates from the neuromuscular and disability communities who contacted their members of Congress were crucial in getting this law passed.

In 2023, MDA teamed up with other disability advocacy organizations to successfully defend the Medicaid program from work requirements and cuts that would have made it harder to qualify for Medicaid services or reduced benefits for people with disabilities.