YOUR VOTE MATTERS:

DISABILITY ADVOCATES CAN HELP CHANGE 

LEGISLATION FOR THE BETTER

While the neuromuscular and disability communities celebrate the progress made, they know there is still much to do to ensure that people with disabilities have the same opportunities as everyone else.

“Our community has told us to focus on reforming federal benefit programs, to prioritize SSI benefits that are better tailored to the century we live in,” says Paul Melmeyer, MDA’s Vice President of Public Policy and Advocacy.

“Without changes, people risk SSI or Medicaid benefits if they pursue a career and their pay makes them ineligible.”

The Supplemental Social Security Income (SSI) Penalty Elimination Act, introduced in the Senate in 2023, addresses this issue.

If approved, it would increase SSI asset limits from $2,000 for individuals and $3,000 for couples to $10,000 for individuals and $20,000 for couples — and these limits would be adjusted annually for inflation.

This would make it easier for individuals with disabilities to hold jobs and save for unexpected expenses without jeopardizing their benefits.