RIGHTS GIVEN SHOULD NEVER BE TAKEN AS A GIVEN

OUR RIGHTS AS DISABLED PEOPLE CAN NEVER BE TAKEN FOR GRANTED

By Heidi Johnson-Wright

Rights given should never be taken as a given.

Just because the law protects us doesn’t mean those protections will always be respected. Not even by allegedly respectable entities such as school districts.

Take Anthony Merchante, for example. Anthony is a cute little 7-year old boy. He has more challenges to deal with, though, then the average 7 year old. He has cerebral palsy, spastic paralysis and a seizure disorder. He cannot speak, and he uses a wheelchair for mobility.

Because Anthony is a person with a disability, he has rights under the Americans with Disabilities Act. One of those rights is the use of a service dog. And it just so happens that a bright, dedicated, professionally trained dog came into his life. The Staffordshire terrier, named Stevie, alerts caregivers when Anthony needs help.

Stevie knows when Anthony needs help stabilizing his head to keep his airway open. The dog steps onto Anthony’s wheelchair and lays across his lap. The dog alerts humans by stepping on a mat with a sensor should Anthony have a medical emergency, such as a seizure. Stevie’s vest carries medical supplies and emergency instructions for Anthony’s human caregivers.

Not only is Stevie an essential part of Anthony’s daily care, but he’s a gentleman, too. He stays at Anthony’s side, is never disruptive, doesn’t beg for food or bother anyone.

Nevertheless, Broward County, FL school administrators decided, for whatever reason, they did not like Stevie. Didn’t want him in Anthony’s school, even though the dog has never misbehaved.

Anthony’s mother tried for two years to convince the school district that Stevie is an essential part of Anthony’s life. She tried to make them see that, without the service dog, her son could not get the education he is entitled to.

The school district put up roadblocks. Administrators insisted that Stevie receive vaccinations not required of other dogs. They required Anthony’s mom to purchase expensive liability insurance and insisted she pay a handler to accompany the dog during the school day. The district even contended that Anthony didn’t need Stevie. That school staff could do all the things Stevie does.  

So Anthony’s mom took the school district to court. In fact, a friend and colleague of mine – Matthew Dietz, represented her and her son. Dietz told the court that the district’s burdensome requirements amounted to “an impossible barrier,” and violated the ADA.

Ultimately, the judge agreed, ruling that is was reasonable for Stevie to accompany Anthony during the school day, “in the same way a school would assist a non-disabled child to use the restroom, or assist a diabetic child with her insulin pump, or assist a physically disabled child employ her motorized wheelchair.”

The school district can no longer separate Anthony from his service dog, and cannot impose the insurance and handler requirements on him.

Now a seven-year old boy – like the other seven year olds -- can focus on math and spelling and social studies. He doesn’t have to worry that the service dog who enables him to do these things will be taken away. That the rights he is guaranteed under federal civil rights law will be violated by a school district that refuses to acknowledge these rights.

It’s been a quarter century since the passage of the ADA. But we must never let our guard down.

Like the way Stevie watches over his friend, Anthony.

Follow Heidi Johnson-Wright's acclaimed blog at: http://earthboundtomboy.blogspot.com

DEAR SANTA: A WHEELCHAIR SPEEDOMETER WOULD BE NICE

EARTHBOUND TOMBOY

by heidi johnson-wright

Dear Santa:

It’s been a few years since I last wrote to you. Like, 45. Probably makes you wonder why I’m sending you this letter now.

First off, let me assure you I’m not writing to ask you for any gifts for myself. I mean, there are some neat-o gizmos that any gimp, myself included, would love. For example, I wouldn’t mind having a speedometer. Why, you ask? So the next time a stranger (that is, the 4,739^th stranger) looks at my chair and asks me “how fast can that thing go?” instead of yelling “bite me,” I can actually holler out a number.

I also wouldn’t mind receiving a pair of shoes. And I’m not talking about a pair of SAS orthopedic, turd brown lace-up Oxfords, like us crips and Denny’s waitresses are so fond of. No siree. I’m talking about a pair of Christian Louboutin Highness Tattoo Dragon platform pumps with a seven inch heel. (If you’re not familiar with Mr. Louboutin’s creations, think back to the type of shoes that only strippers used to wear. For a cool $1,595, now lady executives, lawyers and doctors can wear ‘em, too.)

And I wanna be clear: there’s no way on God’s green Earth I could ever stand in those shoes, let alone take a few steps. What I’d like to do is scuff up the soles real good so they look like they’ve been walked in a whole lot. I’d put them on, get in my wheelchair and go out in public. I’d be sure to sit in the chair so the bottoms of the shoes can easily be seen. Then, I’d take photos of the reactions on people’s faces. I would even create an Instagram account for them.

But enough about my flights of fancy. The real point of this letter is to ask for Christmas gifts for other very deserving people: people who have taken positions on issues affecting us crips. The gifts would show gratitude for their valiant efforts for disability rights.

First, Santa, please bring gifts for the politicians. In particular, I’m talking about the ones who say that the Americans with Disabilities Act hurts business owners. How does the ADA hurt them, you ask? Apparently, requiring a ramped entrance or lowered counters is likely to bankrupt restaurants, stores, theaters, etc. So, even though the ADA is a federal civil rights law, the politicos want to enable businesses to opt-out of it. Otherwise, the entire U.S. economy will collapse just like it did right after the Civil Rights laws of the 1960s were passed. (It did, right?) And we can’t have that. So, Santa please give these politicians the gift of not getting re-elected so they can make an honest living flipping burgers at businesses that discriminate against gimps.

The next group of folks that deserve gifts are the architects, builders and town planners that oppose visitability. Visitability is the movement to change the way homes are constructed so that new homes will have things like a zero-step entrance, interior doors wide enough for wheelchairs, and a half bath on the main floor. Visitability objectors claim these things quash creative design and even worse, give the false impression that non-gimps might someday cross over into gimpdom! For those who are against visitability, please, Santa, give them the gift of six months in a long-leg cast and the inability to use crutches. This will require them to climb stairs on their hands and knees just to get the crapper. Think of the toughness of personal character this will build in those who oppose building accessible homes!

And last but not least, Santa, please bring something special for people who lie about their pets. You know, the inventive folks who dress up their Shih Tzus and Rottweilers in nylon vests and claim they’re service dogs just so they can take them into the Gap and Olive Garden. Such resourcefulness deserves recognition, even if it creates ill feelings toward and distrust of disabled folks with genuine service dogs. For these folks, please give them the gift of a dog bite that gets infected so they end up with a pronounced limp. That way, even if they happen to misplace the dog vest and service dog ID card they purchased from a phony company on the Internet, they won’t need ‘em. The limp will speak loud and clear.  

Well, Santa, I guess I’ve asked for my annual quota of gifts, so I’ll sign off. I’ll have to ask you for gifts for condo and home owners’ associations that bully disabled people next year.

Love,

Heidi

  

http://earthboundtomboy.blogspot.com/2014/12/dear-santa-wheelchair-odometer-would-be.html