WHEN PEOPLE WITH SCI HELP DESIGN IT
Much has changed in the 10 years since Anita Kaiser, a doctoral candidate at the University of Toronto and a research trainee in the SCI Mobility Lab, first entered graduate school.
Then, she received pushback from her advisors who feared her C6-7 complete SCI would bias her data collection and analyses of that data.
But now, “Research has been
slowly shifting to include individuals with lived experience of a specific
illness/disease/condition in the decision-making process from start to finish,”
she says.
Kaiser said this positive shift is an
important step forward because building a strong partnership between the SCI
and research communities can enhance the quality of the research and improve
outcomes.
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