WHEN PEOPLE WITH SCI HELP DESIGN IT
Anita Kaiser, a doctoral candidate at the University of Toronto and a research trainee in the SCI Mobility Lab, says there are seven ways incorporating the lived experience of people with SCI makes research better:
1. We add relevancy, helping to define research questions.
Our presence ensures research is focused in areas of importance to us and that it addresses a need or gap in care or service or explores a novel treatment or therapy that leads to neurorecovery.
NASCIC and
the SCI Alliance are made up of multiple stakeholders, including people with
lived experience of SCI whose mandate is to set priorities for research.
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