PHOTO OPS AT WORLD CUP PARTIES ARE FUN

SAVING LIVES IS ESSENTIAL

I am begging Miami Mayor Eileen Higgins to take swift action to collaborate with Miami-Dade County to reduce unsafe conditions for pedestrians.

A Miami Herald story this week documented that greater Miami is one of the most dangerous places for pedestrians in the entire U.S.

I have supported and voted for Higgins since she ran for elected office in the County.

I attended her kickoff meeting when she successfully ran for mayor.

She has given me a proclamation for my artistic work to support historic preservation.

I now call on my fellow believer in public service and colleague to take decisive action.

A Chief Mobility Officer could save lives and increase safe mobility for all.

A city executive focused on stopping pedestrian deaths and severe injuries would be especially valuable for vulnerable residents who are disabled, elderly or very young.

More than 1/3 of Miamians cannot or do not drive.

That makes for a large constituency that would benefit from wide, unobstructed sidewalks, stiff fines for cars that park on them, longer better protected crosswalks and street redesign that slows down our dangerous drivers and protects mobility by foot, wheelchair or bike.

I suggested the Chief Mobility Officer position (full disclosure: yes, I would be interested in being the humble public servant who takes on this noble role) at the outset of 2026.

But I have yet to hear from our city's progressive mayor. 

Sorry that the Miami Herald chooses to keep this life safety story behind a subscription pay wall -- but you can get the gist from the free video at this link:

https://www.miamiherald.com/news/traffic/article316075848.html

 

 

CELEBRATING 1.5 MILLION BLOG READERS

My blog started out humbly, more than a decade ago.

 

Today, it has had more than 1.5 million unique visitors over its lifetime.

 

Sometimes I share simple photos of my cats or urban street photography.

 

Often, I share my passion for Universal Design and creating a better built environment for people with disabilities.

This year alone, I have traveled to more than a dozen major cities in eight nations – to work on removing barriers and making design more inclusive and wheelchair accessible.

 

I have appeared as an expert: in a major book, on stage at the world’s largest gathering of engineers, in a training video for the largest state gathering of real estate professionals, on national TV, in webinars and in countless articles that I have published in influential planning magazines.

 

Thanks to everyone who follows and supports my work.

 

THE FUTURE OF DEVELOPMENT

 INCLUDES ACCESSIBLE/AFFORDABLE HOUSING FOR PEOPLE WITH DISABILITIES

Hats off to Dr. Charles Bohl of MRED+U Program at the University of Miami School of Architecture for hosting Manager, Housing Development Tom Hospod (in person) + Co-Founder CEO Micaela Connery (via Zoom) of The Kelsey.

The Kelsey is a California-based nonprofit developer bringing accessible and affordable dwelling units to market.

With its inclusive design standards, the Kelsey has a global reach in the U.S.

Developers and disciplines that work with them need to learn about the value of inclusive housing.

I was honored to be introduced as the creator of an innovative Universal Design course and a journalist who has covered how The Kelsey has delivered affordable/accessible housing to the challenging San Francisco-San Jose area.

Tom Hospod shared how funding was done.

I capped off the program saying accessible housing is a growing market share to capture.

Fact: 1 in 4 people experience some level of disability and soon, more people will be older than 65 than younger than 18 in the U.S.

A MEANINGFUL NEW ENDEAVOR FOR A PROSPEROUS NEW YEAR

PROUD TO BE OF COUNSEL TO AWARD-WINNING IDENTITY PR

Mark Winter has been a friend for a quarter century.

I met him when I covered growth, development and urban affairs for the Columbus Dispatch.

Mark, then the small startup -- Identity PR -- boldly won the public relations contract for the acclaimed Nationwide Arena District in the heart of Columbus, Ohio.

Fast forward and Identity has more than 30 employees, a nationwide practice that has won numerous awards and a presence in Miami.

Mark Winter, President and Founding Partner, Identity PR

My roots in Miami go back a quarter century.

I have teamed with Mark Winter of Identity PR to provide full services to businesses involved in real estate/development, design, finance and related fields.

I’m Identity’s man in Miami.

But it’s much more than that. I will be working with nonprofits making the world a better place.

I will be providing content and expertise in Universal Design, Aging in Place and design that makes life easier and more inclusive for all.

Steve Wright -- after a pre-dawn run -- Miami Beach

My of counsel role means I still will be working as a planner, educator, writer and activist within the planning, architecture, design and disability communities.

It also will allow me to continue to carve out time for my growing career as a widely exhibited, acclaimed photographer/visual artist.

Take a moment this week to visit: www.identitypr.com

Then reach out to me and we can set up a Zoom to see how we can help your business leave a mark.

 

PUBLIC RELATIONS AND MARKETING EXPERTISE FROM A LOCAL SMALL BUSINESS

TEAMED WITH A HALL OF FAMER.

My roots in Miami go back a quarter century.

I have teamed with Mark Winter of Identity PR to provide full services to businesses involved in real estate/development, design, finance and making the world a better place.

We also help leading and local nonprofits. 

Mark has done so much as a professional and member of his community in my native Midwest, that he recently was inducted into the Public Relations Hall of Fame.

Take a moment this week to visit www.identitypr.com

Then reach out to me and we can set up a Zoom to see how we can help your business leave a mark. 

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Everyone should be able to go to the bathroom when they want and need to, but without the proper supplies, it can be a difficult and frustrating task for people with disabilities.

Betty Sherril reached out to the Resource Center because she was not receiving enough catheters per month from Medicaid and didn’t know what to do.

“Centers for Medicare & Medicaid Services had hard ceilings on how many catheters they would provide to a CMS beneficiary,” Bill Fertig says.

“Supported by the Resource Center information specialists and the United Spinal policy department, Betty was eventually granted an exemption from CMS catheter limits and began to receive all of the monthly medical supplies that she required.”

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Annie Mitchell reached out to the Resource Center for accessible gardening ideas two years after becoming a paraplegic.

She ended up with several ideas for home modifications and other hacks that Bill Fertig and his team came up with to enhance her quality of life.

“We try to phone people, rather than email,” Fertig said.

“Rather than answering a quick question from a category on a form, it gives us the opportunity to chat and respond more fully and directly.

Hers was a typical case where we were able to identify so many areas of information that she could utilize comprehensively.

When our information specialists make direct personal contact with people, very good things happen.”

On the gardening end, the team suggested a short-handled gardening rake for gardening from a wheelchair.

The gardening chat let to simple home modifications such as:

Spring hinge pins for exterior doors to simplify door opening/closing from a wheelchair

Adding a magnetic catch to the back of the door to keep the door open when needed.

Fold-down kitchen cabinet rack choices for quick accessibility to upper kitchen cabinets.

Vanity drain and trap options to facilitate roll-under bathroom vanity access.

 

 

 

 

 

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Thanks to a combination of Daniela Castagnino’s personal knowledge, contacts at D.C.-based home-health agencies, a local center for independent living, department of disability services and the local United Spinal chapter, the team was able to help Wes Holloway find a PCA and make the move.

“It is great to see that the Resource Center responds quickly in a personalized, thorough and individualized way.

I didn’t get the call center, voicemail runaround,’’ says Holloway, who hopes to teach at the university level while continuing with socially-engaged art projects.

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Wes Holloway reached out to the Resource Center for help finding a personal care attendant when he moved to Washington, D.C., from Houston to pursue a Master of Fine Arts at George Washington University.

An accomplished artist, Holloway took his first year of coursework via Zoom.

But when in-person classes for his second year demanded a quick relocation adjacent to campus, the scramble was on.

Castagnino, who is based in D.C., remembers getting an email on a Friday afternoon that Holloway needed PCA help for the weekend.

“Bill and I put all ideas to work and put all hands on deck at the last minute.

I checked a Listserv for caregivers, CILs and agencies and showed Wes how to narrow a search on Care.com,” says Castagnino.

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Shannon Cobb participates in wheelchair lacrosse, searches for more adaptive sports in her location an hour-plus away from Chicago and is interested in extreme wheelchair sports.

Fertig wrote a letter of recommendation to help Cobb with a grant to fund a wheelchair that stands up to the abuse of WCMX.

The center also has helped the budding social worker with peer advice on how to stretch the paltry disability payment that she receives each month.

Lindsey Elliott, a social worker who serves as United Spinal’s director of member initiatives and as an information specialist, invited Shannon Cobb to one of the Resource Center’s new Zoom-based nationwide peer sessions.

“Her participation led to resources and information from her peers who were on the call — United Spinal members from all over the country.

She was on the call with notebook in hand, furiously taking notes on all the resources,” says Elliott.

“We started these calls to address the isolation born of COVID. They are a time to kick back and chit chat about all kinds of things.

Lots of questions are asked and information is shared.”

“I have learned to be very resilient. I cannot imagine how my journey would have been without the team of people at the Resource Center,” says Cobb.

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Shannon Cobb, a sociology student at McHenry County College in Illinois, says she is one of the Resource Center’s most frequent users.

“I’ve sent so many random questions to the Resource Center — it’s hard to list all the things they’ve helped me with.

Overall, it’s nice to know someone has your back,” says Cobb, a paraplegic who uses a manual wheelchair — often pulled by Princess, her Rottweiler-Shepherd service dog.

“I was having a lot of problems figuring out how to get things done when I was first injured [in 2018],” she says.

“The Resource Center has helped with finding accessible housing, adapting a home to be more wheelchair-friendly and helping me find a wheelchair and getting grants.”

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS 

“Rehabilitation stays have decreased so dramatically over the years I’ve been involved in the field, and it can be so difficult for people to get all of the information they need in such a short time,” Jane Wierbicky says.

“It’s very gratifying to talk with people to help them drill down to the information they need when they need it and hopefully feel supported and less overwhelmed.”

“This is why the Resource Center is here: to fight for people and give them the support they need — on a personal and professional level — to attain the best quality of life possible,” says Fertig.

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

At Shepherd Center, respiratory therapists went to work trying to wean Chris Dunn off the ventilator and strengthen his voice, while physical and occupational therapists attempted to undo the damage a year of lying in the ICU had done.

The team helped Chris build up the lung capacity to only need the vent at night. He was able to go fishing.

After four months, Chris returned to Maine.

He continues to fight the system to receive maximum benefits, while his mother serves as his primary caregiver.

“I don’t know that I would have been able to make things happen without United Spinal Association,” Carol says.

“I was getting tired.

I wasn’t going to give up, but they came in and propped me up and gave me some courage and some encouragement to keep going.

They pointed me in some right directions and stood behind me, and that’s all I needed to cross that finish line.”

 

 

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Working together, Carol Dunn and the Resource Center team enlisted Disability Rights Maine, state legislators and federal representatives and held weekly calls with hospital staff and the state’s Medicaid program.

Ultimately, their advocacy got Chris Dunn into Shepherd Center in Atlanta — one of the nation’s premier SCI rehab centers.

“What it came to down to, up in Maine, was a hospital administration that looked at the injury level he had as not being any kind of quality of life.

So they denied him care that would have given him quality of life,” says Resource Center director Bill Fertig.

“Here is a guy with a very, very significant disability.

But through it all, he has almost universally maintained a strong perspective.

He has taken all that came to him, and he’s happy.

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Jane Wierbicky fielded the question and emailed Dunn’s mom Carol the next day.

That started a partnernship between the Dunns and United Spinal that eventually got Chris back to living his life.

Dunn relied on a ventilator, pacemaker and feeding tube. His complications were challenging, but Wierbicky was determined to help.

“It’s always shocking to me when we see cases where that doesn’t happen,” she says.

“It became clear to me through this case that people living in rural states that don’t have dedicated spinal cord injury programs and those who are on ventilators are in an especially vulnerable position.

All Carol ever wanted was for him to be evaluated by people who understand his condition.

That seemed like a very reasonable goal.” 

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Chris Dunn survived a diving accident in July 2018 that left him paralyzed, on a ventilator and mostly blind.

A father and concrete worker, Dunn spent a year in a Maine ICU, fighting for his right to rehab and get back to living his life.

“I’m pretty sure they just wanted to kill me,” he said in a 2019 interview.

Dunn’s family was repeatedly told there was nothing more that could be done for him and, even though he was in his early 40s, they should put him in hospice to die.

After seven months of reaching out to hospitals and rehab centers all over the country and receiving nothing but rejections, Chris’ mom, Carol, filled out the online form to join United Spinal Association, writing: “We are desperate. We need help, please.”

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Bill Fertig and his team note that the best success stories are when the person’s issue is resolved, and they are given the tools to better advocate for themselves.

“It’s not that we do it all for the person in a vacuum — we make them part of the team, let them know they are on the right track.

We give them factual, current information to base their appeals on,” he said.

“That empowers them to go further and be more successful.”

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

 “Hearing that message from someone living with a spinal cord injury can make a big difference,” says José Hernandez, a Resource Center information specialist.

    With 26 years of life as a C5 quadriplegic under his belt, Hernandez brings a deep blend of lived and professional experience to his work.

   “I take pride in being able to relate with callers and emailers on a deeper level and going beyond what the textbook or doctors may tell them.”

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

Longtime Resource Center specialist Daniela Castagnino says responding to inquiries is as much about making personal connections as solving the immediate issue at hand.

    “When you answer the phone and can tell they are very stressed and upset, and you’re empathizing, and you are familiar with the issue, you can almost sense them start to see that things are going to be OK,” says Castagnino, a quadriplegic.

    “Having a positive effect on people — helping people who are family members of people with new injuries — you can transmit to them the idea you’re not alone.

    It will get better.

    And you will get through this. There’s a whole and rewarding life that’s available.”

UNITED SPINAL’S RESOURCE CENTER

TACKLES TOUGH QUESTIONS

“We’re a collaborative group within our Resource Center, each with our own strengths, knowledge and experiences,” says Jane Wierbicky.

“Together, we truly aim to provide hope, direction and much-needed information to help people get back to doing the things they love.”

She’s an information specialist with over 35 years of experience working as a nurse exclusively in the field of spinal cord injury and related disabilities.