Showing posts with label pop culture. Show all posts
Showing posts with label pop culture. Show all posts

Friday, August 28, 2015

GIMP GIRLS AND CRIP CHICKS RULE

DISABILITY ADVOCACY FROM EARTHBOUND TOMBOY



By Heidi Johnson-Wright



I came of age in the late 1970s, when the girls in my high school sported ultra-shiny lip gloss and perfectly feathered hair. They wanted to be like Farrah Fawcett or Margaux Hemingway, pop culture “it girls” who danced the night away at Studio 54.

I wanted my share of fun, too. But I couldn’t imagine myself doing the bump or the hustle with a partner on a dance floor. The arthritis had turned my body against itself. Instead of grinding with a hot guy in a club, my joints were grinding bone on bone.

I began using a wheelchair for mobility. And I realized that Charlie had no gimp-girl Angels. Faberge wanted no crip chicks in its fragrance ads. It was painfully evident that no women in popular culture looked anything like me.

The only wheelchair user I saw depicted in popular media was Ironside, the character Raymond Burr portrayed in the TV cop drama. A former detective forced into retirement after a shooting renders him paraplegic, he becomes a special police consultant who solves crimes in a wheelchair.

Loads of action! Snappy dialogue! Wheelchair jokes!

I looked around and saw no positive female role models in wheelchairs. No crip chick characters on TV or in the movies. No gimp girl heroines in books or narrators in music or poetry. Didn’t do a whole lot for my adolescent female self-image.

Decades later, pop culture hasn’t made as much disability-positive progress as I’d like. But things are undoubtedly better. Case in point: my friend, Stephanie Woodward is in a Honey Maid graham cracker commercial.

Honey Maid has launched an ad campaign that features inclusive depictions of American families -- same-sex couples, mixed-race and blended and immigrant families. Stephanie and her niece are featured in a spot showing a disabled aunt and niece making apple and cheddar melts together on their graham crackers.

Stephanie is a disability rights lawyer and activist who is currently director of advocacy at The Center for Disability Rights. She signed on for the project, Honey Maid says, because she—and many in the disabled community—want real disabled people featured on TV and in the media, not actors playing disabled people.


Thursday, January 22, 2015

Become Famous! Get Hit by a Car!


earthbound tomboy

By Heidi Johnson-Wright
 
About a week before the end of the fifth grade school year, I was hit by a car.

It was a rainy afternoon when the school day ended. I had ridden my banana seat bike to school and would now have to ride home in the rain without a jacket. I would also have to negotiate a line of backed-up traffic. In our bedroom community, nearly every mom was of the stay-at-home variety. Now a legion of them was swarming the school to pick up their kids. To let kids walk home in the rain meant they were in the same “bad mother” category as women who used Hamburger Helper as a crutch instead of making home-made meatloaf.

As I came out of the building my mom was there, with my raincoat in hand. I whined that I wanted her to put my bike in the trunk and drive me home. She insisted I would be fine on my bike, that I needed the exercise and could negotiate the half dozen blocks on my own. She was right, but something made me uneasy. I put on my coat and headed for the bike rack.

One second I was leaning over to unlock my bike, the next I was lying on pavement surrounded by a group of kneeling adults. My eyes slowly began to focus on the faces of my third grade teacher, my fifth grade teacher and my mom. I could hear people crying and sirens wailing. My mind was equally split between panic and “what the hell?”

A mother had jumped the curb with her car and mowed through the school yard. Had she wanted to inflict maximum damage, she couldn’t have picked a better spot: right through a crowd of kids at the bike rack. I had gotten a glancing blow that fractured my leg. When I fell, my head hit the pavement and I received a concussion and the retrograde amnesia that went with it. I was the second worst casualty; another little girl had actually been run over and was in critical condition.

Had I been an average kid, I would have been sent home with a simple cast and crutches and told to use my arms and other leg to get around. But the arthritis's damage to my wrists meant I couldn’t use standard crutches. Nor could my one good leg bear the weight of two. Instead, I went home with a long leg cast with a rubber heel on the bottom and a platform walker without wheels that was so heavy and primitive, it would have been better suited to Herman Munster.

The first two weeks after the accident were a non-stop procession of my parents’ friends dropping by to offer condolences and nights on the couch in agony as my tibia began to knit. By week three, the pain eased and I traded out the long cast for a below-the-knee model. It was then that I began to enjoy my new-found status as a local celebrity.

In my town, the mere possibility of a McDonald’s opening – the only chain fast food joint besides a Dairy Queen -- was cause for controversy and excitement. So it’s not hard to imagine how just being one of those girls that got hit by that car at the school upped my suburban Q score considerably. But this time my notoriety had nothing to do with my arthritis and everything to do with fame earned by mere happenstance. I was "famous" for being famous. Kind of like being a Kardashian.

Friends dropped by my house daily: close friends, casual friends, even long-lost ones. Often they had a card or a small gift, and a story or joke to share. Naturally, they wanted to hear my version of The Accident. Did I see the car flying toward me or hear the engine rev? (No and no.) Did I remember being hit? (No, but I had nightmares about menacing cars.) What was it like to ride in the ambulance? (Claustrophobic.) Did my leg itch inside the cast? (Often.)

An older sister of one of my friends worked as a summer parks employee, teaching arts and crafts to kids. Several times she brought me goodie bags loaded with supplies and trinkets from her class. Though I couldn’t get out of the house to catch butterflies, I enjoyed the treasures she brought. On hot afternoons, I sipped my mom’s sweet tea while I taught myself to make lanyards and drew pastel sketches of fuchsia plants in hanging pots.

My leg healed fine by the end of July, but the weight of the cast and my struggle to walk with it had put a lot of strain on my knee. It swelled to soft ball size and hurt like hell. I lived in daily fear that I would need to have it aspirated, a procedure in which a large needle is inserted deep into the joint and fluid is withdrawn.

I was starting junior high in the fall. Grades six through nine were housed in a building bigger than my old school, which meant a lot more walking between classes. The school was too far away to walk to it, so I’d have to depend on a bus that was supposed to change its route and stop in front of my house. I was nervous about meeting new teachers and kids, brand new people to whom I’d have to explain why I limped or why I sometimes struggled to get up out of a chair.    

The richly-symbolic menacing cars and the increasing awareness of my precarious health were always with me, in the back of my mind, as I drifted into sleep on late summer nights while the crickets chirped and the cicadas sang.