Showing posts with label civil rights. Show all posts
Showing posts with label civil rights. Show all posts

Friday, June 2, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE

The U.S. Department of Transportation and the U.S. Department of Justice must adopt clear guidelines that municipalities can use to make meaningful accessibility changes to their pedestrian infrastructure. 

DOT should ensure accessible transit facilities, and the DOJ needs to enforce the law for barrier-free public rights of way.

Marsha says United Spinal is also working on micromobility and how dockless scooters and bikes can be hazardous for people with disabilities if not strongly regulated.

Cities must also do more to ensure that buildings are in accessible condition – so elevator outages are not ignored for long periods in residential or commercial buildings.

This is all an incredibly long to-do list. 

It encompasses everything from health and well-being to getting reckless scooter punks to dock their wheels properly. 

But United Spinal’s vision is a world where people with spinal cord injuries/disorders, wheelchair users, and others with disabilities can realize their full potential.

And the whole team is passionate about bringing that inclusive world into being.

 

 

Thursday, June 1, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE

Kleo King, United Spinal’s Accessibility Services Senior Vice President, has a team featuring Marsha Mazz, a three-decade veteran of the U.S. Access Board and United Spinal’s Director, Accessibility Codes and Standards. 

She adds three goals that would lead to a more inclusive future:

Improve ADA standards – and state building codes – to provide for better wheelchair maneuvering and positioning. 

Without this, building codes fail millions of people using mobility devices.

Revise the Fair Housing Act’s accessibility requirements. 

Until the 1989 rules are updated, people with disabilities will continue to face significant shortages in affordable, accessible housing.

We will also continue to be forced to make accessibility adaptations at our own expense.

 

 

Wednesday, May 31, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE

Kleo King, United Spinal’s Accessibility Services Senior Vice President, has a team works nationwide with large and small clients to implement universal design. 

“We tell them to look at universal design that makes facilities easier to use for everybody. That’s good business,” she says as she ticks off trends to watch for. 

“A big thing coming soon is adult changing stations in public bathrooms.

It is a crucial need. 

We must also ensure that electric and autonomous vehicles and all charging stations are accessible.”

 King said anyone who owns or leases a building used by the public could benefit from United Spinal’s Accessibility Services.

“Every building needs an access audit, and every business should have an accessibility consultant,” she says.

https://unitedspinal.org/program/75200/

Tuesday, May 30, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE

Kleo King, United Spinal’s Accessibility Services Senior Vice President, is a primal force for access.

She consults with governments and businesses on why they must make their built environments work for everyone.

“We always tell states and cities that code is the floor, not the ceiling. 

Their building codes can require more than the ADA,” says Kleo. 

“In New York City, 100% of entrances have to be accessible – more than the 60 percent required by the ADA.”

And it’s an ongoing battle.

“We need to constantly educate architects and builders about really good inclusive design practices,” she says. 

But when something is built right, it’s a joy to use. 

“Think of airports where you walk or roll around divides for privacy — there are no doors.

That approach could remove heaving, obstructing doors in many public facilities.” 

Then, accessibility would be gracefully inclusive.


Monday, May 29, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE


We have an ally in U.S. Department of Transportation Secretary Pete Buttigieg, who was instrumental in creating the first Airline Passengers with Disabilities Bill of Rights. 

In an interview, he said he is committed to better onboard wheelchair access for air travel.

“The number of times that people arrive at their destination without their wheelchair working, which is basically as though some of you didn’t get there at all.

It can be wildly disruptive for a professional person, for anyone,” he said.

“We can take the … Bill of Rights as a tool that can empower travelers [who use wheelchairs]. 

We can create some healthy pressure on the travel industry to respect those rights,” Buttigieg says.

“It’s one thing to say the right thing.

But we’re putting our money where our mouth is, and I’m especially excited about that.

Sunday, May 28, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE

“I never met Gaby, but I sure knew she was my soul sister,” says Kent Keyser, a Public Policy Fellow with United Spinal. 

“When I heard that we lost another one to the airlines, I was sick to my stomach and prayed I didn’t know them.

Then when I read the news story, I was just plain pissed off that this happened to someone I sure know but never met. 

Damn it, she was my soul sister in a policy fight that’s David versus Goliath all over again.”

To say United Spinal is passionate about making airlines work for wheelchair users is a gross understatement.

Join our efforts to take the fight to the airlines by joining its Grassroots Advocacy Network.

https://unitedspinal.org/grassroots-advocacy-network/


Friday, May 26, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE



Being a CEO didn’t protect Enzo from mistreatment at an airport. “I was dropped to the floor,” he told Atlanta News First in May 2022.

Although two agents were supposed to help transfer people into aisle chairs, only one assisted Enzo, and one was insufficient. 

Fortunately, another passenger was willing to help, but many passengers with disabilities are not that lucky.

“It was very concerning to me because I could have hit my head or broken my leg,” United Spinal Association CEO Vincenzo Piscopo told Atlanta News First.

“On top of that, it is an undignified experience.

It’s not dignified for a human being to be dropped on the floor in front of people.”

The worst has happened to other wheelchair users.

Disability advocate Engracia Figueroa died from a pressure wound after United Airlines destroyed her $30,000 customized wheelchair.

And Gaby Assouline died from injuries sustained after flipping out of her chair on a jetway.

 Her family says she did not receive the requested help. 






Thursday, May 25, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE 


“We can be healthy, we can have the best access, and people can think the best of us – but we still cannot reach our fullest potential if public policy is not changed.

We cannot have insurance that is so difficult for so many to access.

We cannot have hiring policies that fail to be inclusive.

We cannot have gaps in transportation, mobility and housing.

We are working from the federal to the local level to change policy,” said United Spinal Association CEO Vincenzo Piscopo.

“The way airlines treat people with disabilities is not humane,” says Enzo.

For one, manufacturers must rebuild planes to allow wheelchair users to board in their mobility devices. “There are structural, root changes that must take place.”


Wednesday, May 24, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE


“If a wheelchair user’s place of work is not accessible, he cannot make money, and he cannot be empowered and pay bills.

If she goes out to a park and it’s not accessible, she cannot live life to the fullest. 

If tech is not accessible, it is not inclusive. 

So, making everything accessible across the board is a big factor,” said United Spinal Association CEO Vincenzo Piscopo

Removing stigma. 

“Stigma is the belief that we, people with disabilities, are less than others. 

And when that belief exists, all the inequities we regularly see in our community become OK.

When people think less of us, they are less inclined to hire and invest in us. 

We need to work on removing such stigma. 

An airline executive once told me that making the plane truly accessible was just too expensive.

To me, that means he believes our dignity is not worth the investment. 

That’s what stigma does to us.” 

Tuesday, May 23, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE


United Spinal Association CEO Vincenzo Piscopo uses the analogy of a four-legged table to explain what needs to change for wheelchair users to enjoy the quality of life they deserve. 

Each leg must be strong, or the table will not hold anything for long.

Wellbeing. “We must ensure our people are well and healthy,” says Enzo.

“We must address all domains — spiritual, mental, physical, social, sexual health – and all the nuances that come with them.” 

He points to United Spinal’s Community Support and Peer Support programs as places our members can find resources and support for all these areas of their lives.

Monday, May 22, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE


“We want to go out, but we experience places that are not accessible.

It’s ableism, and what makes it worse is that people don’t even realize they are ableists.

The belief that we are less than nondisabled people is so ingrained in them that discrimination is considered OK,” said United Spinal Association CEO Vincenzo Piscopo.

Enzo lets these experiences fuel his passion for improving the lives of everyone with a spinal cord injury and all people with disabilities. 

He allowed me a sneak peek at how he plans to change society’s view of disability. 

Sunday, May 21, 2023

THE FUTURE IS INCLUSIVE

HERE’S HOW WE GET THERE

United Spinal Association CEO Vincenzo Piscopo wakes daily to dozens of tasks. 

And they are all focused on making the world a safer, healthier, and more inclusive place for wheelchair users and all people with disabilities.

In the dozen years since he joined the disability community and started using a wheelchair for mobility, Enzo feels everything boils down to civil rights.

“Society allows for the abuse of people with disabilities. It’s so ingrained in our culture’s DNA that we don’t even recognize it,” he says.

He runs through a list of indignities he regularly experiences, from the inaccessible scale at his doctor’s office to the limited accessible seating at Braves’ games.

Thursday, February 10, 2022

TOXIC ABLEISM MUST STOP

Florida seized a disabled mom’s 4-day-old son: ‘I didn’t think this could happen in America’


Two days after Alysha Princess Cesaire gave birth to her son on Feb. 1, 2018, someone at Hollywood’s Memorial Regional Hospital phoned the state’s child abuse hotline to express concerns that Cesaire’s physical disability — which causes her to use a walker and have difficulty speaking — rendered her an unfit mother. Extended family members had cobbled together a plan to help the baby’s parents care for the child, Elijah Bastien, safely. But the Broward Sheriff’s Office, which investigates abuse allegations in the county, took custody of the boy at the hospital anyway, and asked a judge to make Elijah a dependent of the state.


In an internal email, the then-director of BSO’s Child Protective Investigative Section questioned why Cesaire’s family allowed her to have a child at all. “If there is such close supervision of this mother, how did she get [pregnant]?,” the former director, Kim Gorsuch, wrote, according to an email obtained by the Miami Herald. “And if they thought it was ok for her to be intimate, why didn’t they get her on some birth control???”

In a settlement to the civil rights lawsuit, Cesaire filed over Elijah’s removal from her care — a judge later ordered that he be returned — the state Department of Children & Families agreed last week to implement a raft of policy changes to align the department with federal civil rights laws that protect people with disabilities from discrimination. Among other provisions, the settlement requires DCF to “make reasonable efforts” to accommodate a person with disabilities “in order that the disabled parent can participate in recommended programs or services” necessary to keep a family intact and children safe. DCF’s Office of Civil Rights will be tasked, the settlement says, with “ensuring that, when necessary to avoid discrimination on the basis of disability, reasonable accommodations… and services requested are provided in an appropriate and timely manner in accordance with the [Americans with Disabilities Act].” DCF agreed to develop and implement a training curriculum to dispel stereotypes about people with disabilities and to help investigators and service providers strengthen the skills of parents with special needs. The settlement adds: DCF, its employees and contractors “will not base decisions about child safety actions on stereotypes or generalizations about parents with disabilities or on a parent’s disability, diagnosis, or intelligence measures alone.”

DCF, which outsources child abuse investigations to BSO under contract, also agreed to pay Cesaire’s lawyers $30,000 for litigating the claim. DCF did not acknowledge any wrongdoing, the settlement says. “I never did anything to anybody,” said Cesaire, 27. “And they wanted to take my child to a foster home.” Cesaire remembers lying on her hospital bed with Elijah next to her. “They took the baby away from me. I didn’t do anything wrong to the baby.” “My heart broke,” she added.

BSO declined to discuss the settlement, noting that BSO is still involved with the federal lawsuit. “Since this involves ongoing litigation, we will not be commenting at this time,” said agency spokeswoman Veda Coleman-Wright. A DCF spokeswoman issued a short statement about the case, noting that Elijah’s removal occurred four years ago, and that it is “not reflective of the way in which similarly situated cases would be handled today.” “The Department strives to ensure best practices are utilized in fulfilling Department responsibilities — including those delegated to our contractors/partners. As such, the Department has worked to increase its training for child welfare professionals and examined its policies and procedures regarding reasonable accommodations and auxiliary aids for parents with disabilities,” said Mallory McManus.

Cesaire was diagnosed in early childhood with “spinocerebellar ataxia,” a genetic neurological disorder. The condition makes it difficult for Cesaire to walk, coordinate the use of her hands and speak. In court pleadings, BSO also suggested Cesaire is cognitively delayed. Records obtained by the Miami Herald show someone at Memorial Regional — the documents aren’t clear who made the call — reported Cesaire to DCF when Elijah was born, suggesting Cesaire and the child’s father, Nickel Bastien, “are vulnerable adults who cannot independently meet their own basic needs, nor can they meet the needs of the baby.” A BSO investigator came to the hospital to look into the report. She interviewed Cesaire’s mother, who told her that the families of both parents had agreed upon a plan to ensure Elijah was safe, and never left alone with his parents. Specifically, Cesaire’s mother and aunt each were going to take time off from work, then the family would enroll him in day care. At night, Cesaire and her son would be overseen by family members. Bastien, the child’s father, denied he was incapable of being a parent. “He told [the investigator] that he is not disabled, he has a job, and he wants to be involved in caring for” Elijah, the suit stated. Nevertheless, the investigator told hospital staff not to allow the family to take Elijah home, and that BSO “will be removing” him, Cesaire’s lawsuit said.

Cesaire was diagnosed in early childhood with “spinocerebellar ataxia,” a genetic neurological disorder. The condition makes it difficult for Cesaire to walk, coordinate the use of her hands and speak. In court pleadings, BSO also suggested Cesaire is cognitively delayed. Records obtained by the Miami Herald show someone at Memorial Regional — the documents aren’t clear who made the call — reported Cesaire to DCF when Elijah was born, suggesting Cesaire and the child’s father, Nickel Bastien, “are vulnerable adults who cannot independently meet their own basic needs, nor can they meet the needs of the baby.” A BSO investigator came to the hospital to look into the report. She interviewed Cesaire’s mother, who told her that the families of both parents had agreed upon a plan to ensure Elijah was safe, and never left alone with his parents. Specifically, Cesaire’s mother and aunt each were going to take time off from work, then the family would enroll him in day care. At night, Cesaire and her son would be overseen by family members. Bastien, the child’s father, denied he was incapable of being a parent. “He told [the investigator] that he is not disabled, he has a job, and he wants to be involved in caring for” Elijah, the suit stated. Nevertheless, the investigator told hospital staff not to allow the family to take Elijah home, and that BSO “will be removing” him, Cesaire’s lawsuit said.

A court petition seeking custody of Elijah said “the parents are not meeting the child’s basic and essential needs for food, clothing and supervision and the child likely will be seriously harmed.” Elijah had not yet left the hospital, and Cesaire and her family had been given no opportunity to care for the newborn. Muller said she told investigators she and her daughter had “a lot of family here in America” and a “strong support team for the baby.” Muller told investigators that she has always cared for her daughter, and expects to “be caring for [her] for the rest of her life.” When her mother goes to work, Cesaire stays with a family friend, Nickel Bastien’s mom, the investigator was told. “The mother has a fervent desire to be a parent, and does not fully understand how her disability places the child at risk,” said a petition BSO filed to take custody of the newborn.

Muller said child welfare workers “dragged Alysha in front of a judge” as if she had done wrong. Broward Circuit Judge Alberto Ribas, who presided over BSO’s petition in child welfare court, denied the petition, writing there was no probable cause to remove Elijah from his parents. In an order dated Feb. 7, 2018, Ribas instructed BSO to execute a “safety plan” with the parents, and offer them services to help protect Elijah. “Family [is] to assist in caregiving for child,” Ribas wrote in his order. Under the Americans with Disabilities Act, a landmark civil rights law passed in 1990, BSO was required to “address the functional effects” of the parents’ special needs, and accommodate them where necessary to raise Elijah. After Ribas signed his order, BSO case workers continued to supervise the family for an additional three months, according to Muller and court records.

Caseworkers called constantly, Muller said. At all hours, they visited the Coral Springs home that Muller, Cesaire and Elijah share. “For three months they were knocking at my door, any day, any time,” Muller said. “They’d say, ‘We need to see Elijah now.” “It’s like me and my child did something wrong. What did we do wrong? They are knocking at my door early in the morning.” Matthew Dietz, one of three attorneys representing Cesaire — the other two are Stacie Schmerling and Howard Talenfeld — said BSO investigators and supervisors noted Cesaire’s physical challenges and made immediate and erroneous assumptions about her ability to be a parent. “The BSO child protective investigator took efforts to remark how Alysha was observed drooling, and that, based on her history, there was an implied threat to the safety of the baby,” Dietz said. “BSO deemed Alysha unfit to be a parent without any investigation of her abilities, or any services that could assist her.”

Said Dietz: “This settlement effectively changes the evaluation of parents to not focus on the disability as a disqualifying factor in the decision to shelter a child, but instead focus on what accommodations and community resources are available to assist a parent to be more successful in having a family.” Elijah, who just turned 4, is thriving, his grandmother said.

He loves to dart around on a scooter, which he got for Christmas. He plays with a tablet, and watches Mickey Mouse — though he prefers to be with family members rather than in a room watching television. He likes to kick a soccer ball around with his cousin. He’s a picky eater, Muller said. He likes “American food” like pasta, macaroni and cheese and potatoes — but not the stews that are a staple of his family’s Haitian culture. He prefers grits and strawberries to meat. He’ll put ketchup on almost anything, including just bread.

“He’s my little bundle of joy,” said Muller, who still tears up when discussing his first months. “It was really, really painful. I never thought that we could have that kind of treatment here in America. America says it cares for disabled persons. “But you have to expose yourself to the real world to see how it treats disabled people here in America.” 

This story was originally published February 10, 2022 9:27 AM. CAROL MARBIN MILLER 305-206-2886 Carol Marbin Miller is the Herald’s deputy investigations editor. Carol grew up in North Miami Beach, and holds degrees from Florida State University and the Columbia University Graduate School of Journalism. She has written about children, elders and people with disabilities for 25 years. Stories written by Carol have influenced public policy and spurred legislative action, including the passage of laws that reformed the state’s involuntary commitment, child welfare and juvenile justice systems.



Read more at: https://www.miamiherald.com/news/health-care/article258155053.html#storylink=cpy


Saturday, December 4, 2021

AUTHOR WIL HAYGOOD IS A NATIONAL TREASURE

COLORIZATION, HIS LATEST BOOK, IS A MUST-READ


Wil Haygood is one of America’s finest writers.

With each book, his storytelling grows more confident. His way with words that much more enticing and entertaining.

In addition to being an outstanding newspaper journalist with the Boston Globe and Washington Post, Haygood has produced several biographies of African Americans.

Colorization – One Hundred Years of Black Films in a White World, is not a book solely focused on racism. But racism in the film industry resonates all through the book. 

And spoiler alert: institutional and obscene racism didn’t end during World War II, during the great 1960s Civil Rights Movement, not with the rise of Spike Lee and frustrating – not well into the 21st century. 

Read my full review on Medium at:

https://stevewright-1964.medium.com/author-wil-haygood-is-a-national-treasure-colorization-his-latest-book-is-a-must-read-abefc83de686




Saturday, September 25, 2021

THANK YOU TO MAYOR FRANCIS SUAREZ AND HIS TEAM

GIVING CREDIT WHERE CREDIT IS DUE

Where I grew up, you went out of your way to thank a person for helping you.

Recently, Miami Mayor Francis Suarez and his professional team – in this case led by Director of Constituent Affairs Lazaro Quintero – addressed a problem that threatened the health, safety, mobility and civil rights of my wife of 33 years.

I will not go into much detail -- because if the person who illegally targeted Heidi Johnson-Wright ever attempts to hurt her again, a half dozen lawyers will litigate them into oblivion. Suffice to say, picture a super-sturdy and costly wheelchair ramp -- in place for 20 years at a 100-year-old home – coming under attack without cause or justification.

At the brink of launching an exhaustive legal recourse and unrelenting media campaign to underscore an unjust situation bordering on a hate crime, we reached out to Mayor Suarez.

Years ago, when he was our District Commissioner in the City of Miami, he resolved a longstanding battle over the future of the small green space we live on. Historic William Jennings Bryan Park was slated to become two acres of asphalt for a noisy traffic and parking nightmare that would trade tranquil open space for a grossly out-of-scale tournament tennis center.

A compromise was drafted. Basically, the eastern acre of the park became active space – three outstanding tennis courts, a restroom/park manager building the size of a small house, a barrier-free play area plus preserved trees and benches. The western acre remained as one of the few islands of green grass – where folks 8 to 80 could play dozens of games, from kite flying to soccer.

Long known as a free-thinker who speaks his mind, I think my praise for Mayor Suarez and his team means more because I have had no issue sharing problems with the city. This blog and all of my social media has called out the mayor, city manager, commissioners plus city departments and organizations.

Usually, it is about lack of wheelchair access. Dockless scooters blocking curb ramps, sidewalks and bus stops are a frequent target of my speaking truth to power. I also shine light on new or renovated buildings that illegally lack wheelchair access.

I’ve also been known to criticize development deals, especially those that encroach on precious park land.

While I don’t back every policy decision Mayor Suarez makes, but I appreciate him deeply for sincerely caring about people with disabilities.

We praise his actions while stressing that he DID NOT do us a favor. We did the city a favor, by alerting it to a civil rights-denying action against people with disabilities.

Recognizing this and protecting the interests of all who have physical, visual, hearing and cognitive disabilities, is what earns our praise.

 

 

Tuesday, August 3, 2021

THE AMERICANS WITH DISABILITIES ACT IS ENTERING ITS FOURTH DECADE

THAT’S A MAJOR NEWS STORY


It would be nothing short of unjust, in this era of heightened awareness, to report on every aspect of inclusion 

— with the exception of people with disabilities and the landmark ADA.

Monday, August 2, 2021

THE AMERICANS WITH DISABILITIES ACT IS ENTERING ITS FOURTH DECADE

THAT’S A MAJOR NEWS STORY

We must press on. We must protect the ADA and hope for more.

Inclusion is the name of the game in America. 

Every right-minded, good-hearted person is peacefully marching, voting with their dollars and making changes in their workplaces and personal behavior to ramp up equality.

Sunday, August 1, 2021

THE AMERICANS WITH DISABILITIES ACT IS ENTERING ITS FOURTH DECADE

THAT’S A MAJOR NEWS STORY

I am happy we have the ADA. 

When it passed, did I think the built environment would be 100-fold more accessible after 30 years of it on the books? 

Yes.

Am I deeply disappointed that sidewalks, parks, pools and other public spaces — as well as restaurants, retailers, hotels and taxi/rideshare vehicles — are still routinely inaccessible to my wife and others who use wheelchairs for mobility? 

A disgusted, resounding yes is the unfortunate answer.

Friday, July 30, 2021

THE AMERICANS WITH DISABILITIES ACT IS ENTERING ITS FOURTH DECADE

THAT’S A MAJOR NEWS STORY

I hope every newspaper, from the great old newspapers of record to the smallest daily in Middle America;

every television station, from the highest rated network news to the smallest cable access show;

and every radio news program, from Washington D.C. to low watt operation in the Rocky Mountains; 

has its best reporters, columnists and anchors working on ADA stories.

Thursday, July 29, 2021

THE AMERICANS WITH DISABILITIES ACT IS ENTERING ITS FOURTH DECADE

THAT’S A MAJOR NEWS STORY

Countless people of all ages have died of COVID in nursing homes and similar facilities — because despite being the wealthiest of nations, we prefer to warehouse people with disabilities in substandard conditions.

The rights of people with disabilities must be researched, explored and explained by dogged journalists.